These are recent excerpts from FaceBook page of my fellow Person With Dementia (PWD) friend, retired Doctor David Kramer, who is “Living Well with Alzheimer’s”: Living Well with Alzheimer’s Sept 26, 2014 at 7:31am: Words count. Those of us with Alzheimer’s and related dementias are very sensitive to what is said to and about us. […]
Today I want to tell you about my fellow PWD (Person With Dementia) friend, Robert Bowles, and what motivates him for living with a dementia diagnosis well. The introduction is by his daughter Ashley on July 1, 2014: I sit here a grateful, amazed, and proud daughter. … My Dad inspired me as a pharmacist, […]
I am not stupid but my thought process is definitely distorted and causes problems with my decision-maker. … the problem is that these are symptomatic of my decision-making process and I never know when it will become dangerous.
Nightmares of Harry Urban We talk a lot about what our life is like during the day time hours. It is hard and sometimes frightening. We struggle and get so confused. Have you ever thought what our nights are like when you are sleeping? That is when we walk through our Hell, all alone. […]
Reality has rotated; “Consensus” reality (recognized by other persons in my everyday environment) has stepped back and feels more distant — displaced somehow by vivid, ultra-realistic dream reality. … My night-time life is scary but rewarding … and exhausting. My life is very exhausting.
Tru here. New Sunday paper began in August 2014 titled “Thru the Looking Glasses of PWD: Read our Sunday paper to see Dementia “Thru the Looking Glass” of fellow PWD (Persons With Dementia) Life Perceptions”. This is currently edited by Truthful Loving Kindness and updated each Saturday night online. https://paper.li/f-1408973778 . Subscriptions are available delivered […]
Link to Susan Suchan’s speech at 2014 Tulsa, Oklahoma Alzheimer’s Walk: https://www.youtube.com/watch?v=CQSXM5JHBlU . Transcript below: It is wonderful to see you all here today, thank you. I want to tell you a little bit about my personal story. About eight years ago I lost my sense of smell. I nearly burned my house down because I […]
Tru here. My Dementia Mentors video regarding Driving with Dementia was posted at dementiamentors.com/videos section on Sunday August 24, 2014. Some people have difficulty viewing Vimeo sources, so it is also posted at https://www.youtube.com/watch?v=IlXo8cvBpEc . (I still have not learned this application very well so if that link does not work then go to “truthfulkindness” […]
Tru here. AVAILABILITY of online dementia Communities: Dementia Alliance International (DAI) sponsors several online video “support” groups, each with no more than ten members. My group gathers on Mondays. DAI also sponsors video group “Café Le Brain” online Memory Café, which I attended today (Tuesday). Dementia Mentors (DM) has the video group Memory Café Wednesdays, […]
Tru here. Edmonton Journal Link to article of August 20, 2014: Dead at noon: B.C. woman ends her life rather than suffer indignity of dementia (with video). I have heard talk that in many countries suicide will be EXPECTED for those with disabilities (especially dementia) in the future, exactly because of the reasons Gillian discusses […]
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