Creating is How i Remain
Art is not decoration.
It is a load-bearing wall.
When language thins,
structure remains.
Creating is how I remain.
(Read more at TruthfulKindness.com)
Category Archives: Crucial
Living with Lewy Body Dementia Symptoms: Understanding REM Sleep Behavior Disorder Dreams 2026a
This entry highlights the connection between Lewy Body Dementia and dreams of REM Sleep Behavior Disorder, including its personal impact and clinical context. The summary covers the prevalence, some of the symptoms, emotional effects, and treatment approaches
A Decade Later: the Power of Online Dementia communities
Ai short summary: This entry updates readers on the importance of online peer groups for people living with dementia. These platforms, like Facebook and Zoom, help form connections, reduce stress, and give access to collective wisdom and support. The post also discusses the positives and negatives of mixed groups of people with dementia and care partners, and highlights several advocacy organizations worth exploring.
Living with dementia symptoms feels SLIPPERY
My understanding of anything other than touch is very VERY temporary …
More Toilet Issues
Toileting issues of Color, Lighting, Recognition, and Hand-Coordination.
Dementia and Seizure intro
… Loads of things can go wrong after a cognitive event, so requires close supervision during first few days …
Orienting to (Someone Else’s) REALITY
it obliterates my sense of SELF which is integral to my well-being.
Stability and Landmarks
Repetition and pattern is crucial in my life, because it promotes stability and orientation.
Appearance of “Lying”
… “Can it really be lying if we think it is the truth?” …
Care-Partnering is a Three-Legged Stool
… One leg of the stool needs to be the input from Person Living with Dementia. Second leg of care is primary care-Partner. Third leg of care is ALTERNATE care-Partner.
