I realize this is just beginning stages and no sense in wasting too much time for focus of loss.
But also important to recognize loss, and endure the grief process, in order to best appreciate the time remaining.
Today has been one of those days. … Losing every enjoyed activity and losing memory of every loved one – in excruciating increments.
Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)
“What is your hope?” “What gives you ability to keep on keeping on, despite knowing what the future holds?” … (( My personal motivation statement ))
Tru here. Example of my cooking prowess from day before yesterday: tried to cook a super simple recipe so what could go wrong? Cut finger (rather severely because picked up shears that cut bone) from tremors & poor estimate of finger placement when opening mix packet. Meanwhile knocked liquid to floor and made mess that was […]
Sooner or later this frontal-lobe filter will fail; that is an accepted part of this path and almost inevitable. … It is not that I do not enjoy time spent with friends I have developed in these groups. It is not that I do not value their friendship, I just cannot afford extra stress from the “privacy” aspect of group. … if you don’t want me to spill the beans, don’t put them in the pot.
Tru here. In the last year or so I don’t communicate one-on-one very well. It has become strained and costs a lot of energy. A common dementia symptom is my sound-processing disorder; trying to unscramble numerous connected sounds into words, sentences and thought sequences, in order to understand what someone is telling me costs me […]
compensatory tools no longer working for me …
Tru here. Enough added people are following this blog that I thought I would clarify my diagnosis and share my thoughts for the next few months. LONG post! 2015 Update here >> https://truthfulkindness.com/2015/05/18/re-blog-diagnosis/ and 2016 Update here >> https://truthfulkindness.com/2016/11/30/symptom-progression-strategies-2016-dec/ Summary: My GP and I agree on diagnosis of “dementia” but waiting for confirmation from neurologist. […]
Tru here. ((Updated 2018 Mar 3)) Remember that any Links are not behind pictures, but in the colored text. Definition of craft (kr ft) n. 1. Skill in doing or making something, as in the arts; proficiency. As my introduction prefaced at >> https://truthfulkindness.com/2014/10/02/arts-crafts-dementia-intro/ I feel most “alive” when I am creating something, so these are […]
Tru here. October was always month of creativity at our house. Trick-or-treat meant we needed to prepare gift for each house we visited. Some years it was physical gift like autumn greeting card, but some years activity gift like song or very brief skit. One year we did dance/acrobatic performance at each door for Halloween. […]
