Tru here. Recently returned from three weeks of overnight stays at various places, and I was asked for suggestions. Flooring: Highest priority was carpeting. Most places we stayed did not create feeling of disorientation from pattern of the carpet, but one place did. Every time I stepped out of the door to our room I was […]
Due to some recent events, my lack of confirmation for dementia diagnosis has become an issue.
Thought I would re-post my previous blog on the subject, just to make sure there are no current misunderstandings (and for my many new friends). Current status is STILL pending. Have had two specialist appointments in past 4 months, and 2 more appointments are currently scheduled.
Tru here. Hope to get computer from shop sometime this week. Until then limping along without my FaceBook friends. So here is this week’s entry (without photo for now) kind-of unrelated to dementia symptoms, but when I sat down with pen this is what came out because this is what I am thinking about. Newfoundland […]
Tru here on Sunday, April 19. On Friday, I finished my first public speech in many years, on subject very important to me; Value of PWD Lived Experience as Contributor towards Dementia Friendly Community. Husband took these pictures as part of the video which we hope to post soon. Saturday there was a meeting, and […]
Current draft of my oral presentation at Australia
A discussion of my own goals … while living with dementia symptoms.
This Dementia Trail is a very bumpy trail with tangles of thistles!! As we go, we can sign-post some of the dangers for those following behind, and I think that is what we do with our writings. Coaches & on-lookers can observe and assist, but we on the Dementia Trail itself have a unique perspective. Someday there will be a cure, and we hope the trail will not last long enough to become a well-worn path. But in the meantime … Thank you, Harry, for continuing to shine the light on your path, in order for us to better see our own paths.
Remember when Teepa Snow had us put our hands in front of forehead, then illustrated impulse filter? Well lately I am seeing that demonstrated in my own life; my impulse-control is getting a hole in it. …This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself?
This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself? As far as talking, it comes back to what I said three months ago; the only secrets I know I can keep … are the ones I forget. So again; if you don’t want me to spill the beans … don’t put them in the pot !
“How we made a difference for self and those around us AFTER diagnosis”
A dementia brain-storming project by participants of PWD Perspective newsletter
tub strategies and issues
