Recent Disconnect from Understanding Source of Dissatisfaction
Dissatisfaction does not connect with source of dissatisfaction – just too vague. …
Category Archives: Journal
PWD Experience as Resource for Dementia Professionals
Tru here. 2014 was the year I realized that, in an ideal world, the collective lived experience of Persons With Dementia (PWD) would be a rich resource for dementia professionals (or any person) dealing with PWD. 2014 is the year I began hallucinations, and then began Aricept prescription. Aricept much improved my hallucinations, recognition of […]
PWD Leadership in My Own Life During 2014
Tru here. What does a leader of PWD (Persons With Dementia) look like? Collins dictionary says a “Leader” is the first person on the climbing rope. It is the first animal in the team, or the first section of blank film or tape into the projector or machine. Vocabulary dot com says it is the […]
Please Do This for Me
Tru here: The feeling of being surrounded by people — but people so very DIFFERENT than I — is loneliness … in a crowd of loved ones. I APPEAR to be just my normal self. No huge changes are visible. All changes are beneath the surface. You do not see change in my actions so […]
Melancholy Day
I realize this is just beginning stages and no sense in wasting too much time for focus of loss.
But also important to recognize loss, and endure the grief process, in order to best appreciate the time remaining.
Today has been one of those days. … Losing every enjoyed activity and losing memory of every loved one – in excruciating increments.
Hold My Hand ‘n Anchor Me
Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)
My Motivating Hopes for Living Well with Dementia Symptoms
“What is your hope?” “What gives you ability to keep on keeping on, despite knowing what the future holds?” … (( My personal motivation statement ))
Arts ‘n Crafts with Dementia Symptoms – Cooking Tips
Tru here. Example of my cooking prowess from day before yesterday: tried to cook a super simple recipe so what could go wrong? Cut finger (rather severely because picked up shears that cut bone) from tremors & poor estimate of finger placement when opening mix packet. Meanwhile knocked liquid to floor and made mess that was […]
Privacy, Secrets, and My Dementia Symptoms
Sooner or later this frontal-lobe filter will fail; that is an accepted part of this path and almost inevitable. … It is not that I do not enjoy time spent with friends I have developed in these groups. It is not that I do not value their friendship, I just cannot afford extra stress from the “privacy” aspect of group. … if you don’t want me to spill the beans, don’t put them in the pot.
More Thoughts on Communication in Early Stages
Tru here. In the last year or so I don’t communicate one-on-one very well. It has become strained and costs a lot of energy. A common dementia symptom is my sound-processing disorder; trying to unscramble numerous connected sounds into words, sentences and thought sequences, in order to understand what someone is telling me costs me […]
