Listed alphabetical by subject: Art, Diagnosis, Relationships, & Stigma These are newest pages that I have posted from persons with dementia symptoms who have shared their lived experience thru words or projects. (I add the word “symptoms” because not everyone uses the same vocabulary; my collections include pages from those with diagnosis of Mild Cognitive […]
I am sorry; thought I posted some of this long ago, but then discovered it was still unfinished in “draft” status, because I apparently made some huge mistakes. It took me until now to correct mistakes and finish. Listed alphabetical by subject: Advocacy, Art, Brain function, Craft, Importance of Patient-Perspective, Photography, Prose, Update
… I realize I must further decrease schedule from monthly to seasonally in hope to continue the project at all …
My spiritual perspectives have changed dramatically in past ten years, but memories of WHY I myself made those changes are growing dim. Why do I no longer celebrate the special days that my loved ones celebrate? … Soon I suspect you will again find me enjoying those activities, because my theological understanding is going backward in time, as well as all my other memories.
Tru here. Winter HOLIDAYS are arriving, usually involving celebrations with family and friends, which can be very dis-orienting for us living with dementia symptoms. My dementia symptoms continually progress, but they progress very slowly. Progression is so slow that family and friends do not see a need for change on their part. So they ignore […]
“Music is Connection (despite dementia symptoms): to myself, to others, and to the unseen rhythms connecting each living entity.”
How many of our own children, grandchildren, or others watching us now, will be dealing with these same symptoms in future years?
Current draft of my oral presentation at Australia
A discussion of my own goals … while living with dementia symptoms.
tub strategies and issues
