Crafting Tips for Memory Symptom

Tru here. Creating makes me feel alive, so I want to THINK that I can do sewing and stuff for as long as possible (even after I am not really capable of doing it). i have spent substantial time lately on crafting, so think it is about time to write on it again.  But, as always, remember that effective strategies are very person-centered.  Important to gather many ideas for strategies, then pick and choose what might work for the way your particular person-hood operates.

Summary of Strategies mentioned here are strategies i use to compensate for MEMORY symptoms while creating: i use clear tubs, clear bags, and no doors on cabinets, in order to facilitate finding supplies and tools. i keep insulated gloves right next to microwave and/or stove. Measurements marked on mixing container combats my problem of losing count when adding ingredients.

DETAILS:

FINDING supplies and tools:
Whether creating paper cards (one of my latest crafts), creating my protein mix for making my daily drinks, or creating almost ANYthing, one of the primary problems for someone with memory issues is finding supplies and tools. I may spend the better part of a day (or a week, LOL) trying to gather supplies, because if it is not VISIBLE then i need to play hide and seek — with the slate wiped clean periodically of both what i was looking for and where i have already looked.  Remember shaking the etch-a-sketch to wipe the slate clean — or cleaning all the chalkboard erasers after school?  ((smile)).

i check this drawer and that drawer. What was i looking for again ? Oh yes … it is written on the paper here on countertop.
maybe i considered it in this category, so look in this cabinet. Oh did i check this drawer (for the 5th time)?

Some folks take photo of contents and post it on door, or cover door with chalkboard paint to enable listing of contents. I prefer no doors and clear containers.  So whether cooking, or in my craft room, i have no doors on cabinets, making tools and supplies visible.

Clear bags and clear tubs (otherwise even with wording i need to check and make sure what i might have considered in that category — and sometimes the general category word might not register as including what i am looking for).  I use lots and lots of less-expensive ziploc tubs (same size for eazy stacking/nesting) and ziploc one-zip bags, for cooking, crafting, and in suitcases.

A major problem is remembering where i have checked so that i do not check a dozen times,
but have no work-around for that — yet.

BOX for Future needs:
I have a box for almost-complete projects, and projects that only need embellishment. This is for when I know it would be good to feel the spark of alive-ness that i get when creating something, but do not have much capabilities available.

One element of this box is rather “empty” coloring pictures, that I can fill with zentangle patterns … THEN color. This creates a picture that is more entirely by me, because I created much of the design inside the very open picture which I started with.  An example of “Zentangle” is included in the Links (“Crafts i use”).

Most of the other items in box are items that are finished (by me or purchased) — but would be nice with some kind of embellishment:
Paper projects that would be nice to add elements on.
Pieces of clothing that would be nice to change to decorative buttons, or add just a few stitches of embroidery or applique.
Placemats for table that would be nice with some elements of embellishment, etc.

GLOVE to avoid burns:
Surprising how many of my friends show up in chat with burns. i will often forget the need to use potholders — or forget HOW to use potholders.  When heating or cooking, keep insulated glove/mitts right next to microwave (or stove, if you are still able to use one).  Seeing the gloves reminds me to use them, and since mittens were used since childhood, it is natural to remember how to put them on.

Measurements marked on the mixing container:
Cannot use stove, but i can still help put ingredients together for mixes and such, but counting measurements (ie 7cups) is a problem because i loose count. I make my cholcolate protein drink at least once daily, using protein mixture i originally put together myself.  Husband now makes the 2-gallon powdered protein mix without me, but my smaller protein container for each day has the liquid measurements marked on the shaker itself, somewhat similar to my creamer, below. I fill to the bottom line with coffee concentrate from my cold-water-coffee-system, then the next line with second ingredient, third line with cashew milk, then add 1/2cup protein mixture (the measuring cup that is inside container of protein powder). Shake (but make SURE to get the lid on first, LOL).  Then add a couple more ingredients. When i make my chocolate coffee protein, i fill 1/4 of my mug from protein shaker and the rest water. Making coffee with cold-water concentrate, i do not need to worry about caffeine keeping me awake or acids upsetting my stomach. Since i need to eat every 2hrs for blood sugar, i use a lot of the protein drink as blood-sugar strategy during the day.  Cold days i drink it hot … and hot days (which never happen unless we are traveling LOL) … i drink it cold.

Creating a presentation in form of speech or blog is creating also – in a certain sense you might term it the craft of writing. i often use quick notes of voice-to-text on cell phone, for ideas and pieces of presentation. For this we need to remember where we stored information, and how to access applicable information. Personally, loving libraries since i was a young child, i use Dewey Decimal System on my computer, to store information and Links. I use Dewey Decimal System in hard-copy files to store everything from photos to other generalized information of life.  Some days, remembering how to use the application for my blog just does not process well, and i need to put it away … and do something else. Yes; i know sometime i will be unable to retrieve the knowledge, no matter how many days i wait. … but that day has not yet arrived so i will continue to try and get as many of my own thoughts, and the helpful thoughts of others who live with dementia symptoms, put to WorldWide Web in a format that can be accessed during years to come.

During 2014 I wrote a few blog entries on Crafting issues :  Right-click on colored text and selecting “open in new tab”, will allow you to return to this tab easily when you finish.  Remember, Links are on colored text, not the pictures.

Intro >> https://truthfulkindness.com/2014/10/02/arts-crafts-dementia-intro/ ( just as loved ones need to let go of comparison, and learn to appreciate the being-ness along with those behaviors that remain, so do we as persons with dementia symptoms. When i think about crafting before dementia symptoms began and COMPARE, it can create extra frustration problems. I need to focus on what remains of my abilities thru each step of the process, and gather tools/techniques to maximize whatever capabilities still remain in that particular month. So that i will retain skills and feeling of creativity as long as possible).

Crafts I Use ((recently updated)) >> https://truthfulkindness.com/2014/10/09/crafts-i-personally-use-for-dementia-symptoms/

Samples (from others) >> https://truthfulkindness.com/2014/10/14/arts-n-crafts-samples/

Cooking >> https://truthfulkindness.com/2014/10/28/arts-crafts-dementia-cooking/

Excerpt from other previous blog entries are below.

2015 Sep 15: My main project was to crochet a collar and set of cuffs for Autumn/Winter. This is my 5th attempt at making cuffs — and this time I finally succeeded. Coping mechanisms: Keep simple instructional videos from youTube handy for when I forget how to do stitches. Use only multiples of 3, 7, or 12 stitches, so if it looks like I have been doing only a few stitches then it must be 3, or if a lot then it is a multiple of 12. Cannot keep track of which direction I am going when I get interrupted, so every time I change direction I move my “stitch marker” ( from http://www.clover-usa.com/en/best-sellers/140-locking-stitch-marker.html ) to mark beginning of new row. That technique successfully avoided my problem of doubling-back instead of finishing each row.

2016 Dec 31:  At this point, My tremors have become too severe to do any kind of painting, or mixing for designing fragrances, without help. My memory for the beginning process of crochet has become poor enough that I now often need help with the cast-on process of new project. We bought sewing machine early 2016 … which has never been used. … and I do not feel bad about it, because seeing it there is HELPFUL for my health !! Even if I never have another day that I both have time and am capable of using it.

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018-03/03. Tags are: craft, dementia, memory, PWD, strategy, symptom.

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Pages added 2018 Feb

Posted these pages during February 2018:

Myrna Norman

Skit for Strategies >> https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/skit20180205/;

Bad Day Suggestions >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/myrna-norman/bad-day-suggestions/;

 

Harry Urban

New Project >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/new-project/

To Teach Others >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/to-teach/

 

Janice Crich

Names n Numbers >> https://truthfulkindness.com/index-persons-with-dementia-pwd/janice-crich/names-numbers/

 

Scott Drevs

Introduction >> https://truthfulkindness.com/index-persons-with-dementia-pwd/scott-drevs/intro/

 

Susan Suchan

Pages with Susan Suchan >> https://truthfulkindness.com/index-persons-with-dementia-pwd/susan-suchan/

 

Truthful Kindness

My Medications >> https://truthfulkindness.com/about/medications-4sx/

 

Updated my Index page for “Other Contributions” at >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/.

Still My Life planning tool

Tru here.  This InfoGraphic project was collaboration with 3SpiritUK, myself and my husband during 2014.  Much thanks to Caroline Bartle, Anna Tatton, and Trish O’hara for including us in this project.

This is one of those things that i think would be really good to include with packet for newly diagnosed, along with Link resources for peer groups like Dementia Mentors, DAI, and local groups, etc.

Received permission at my personal FB page >> https://www.facebook.com/truthful.kindness/posts/10214922047263247

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018-02/19. Tags are: alzheimers, dementia, diagnosis, infographic, PWD, strategy.

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Recent Pages by others 2018 Jan

Posted these pages in the section for “Other Contributions” during January 2018:

 

Kathleen Anduze re LB D Symptoms & relationships at >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/kathleen-anduze/jan2018/ ;

Mike Matherly, “Gotta Laugh or Cry” at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/mike-matherly/gotta-laugh-symptoms/

 

Index page for “Other Contributions” at >>  https://truthfulkindness.com/index-persons-with-dementia-pwd/.

___ doesnt have dementia, end-quote

Love this quote used in poster that i found on blog entry here >> http://lilyemmaline.com/belittling-others/

 

“Forgive those who insult you, attack you, belittle you or take you for granted,
but more than this…
forgive yourself for allowing them to hurt you.”
— by unknown author

Tru here.  It is so very maddening when folks say “oh that person does not have dementia”, and belittle those who are trying to help others by sharing their symptoms and coping mechanisms in the public forum.  Even medical professionals within an organization will argue over whether a particular diagnosis is correct,  but at least they are professionals — and ideally they have as much data as can be currently gathered regarding the patient.

For us as persons with dementia, care-partners, family and friends, I think sometimes there is simply a need to understand that there are many factors involved in how quickly symptoms progress in a person with dementia.  Each person is different, and each progresses in different areas at different rates.  These are just my personal thoughts, and i have no medical background, just observation of family members and many friends with dementia thru the years:

 

Fixed Factors (currently nothing anyone can do about these factors):

  • DNA genes,
  • mixture of types of dementia and how long they have been progressing before diagnosis,
  • specific placement of where the swiss-cheese holes are currently located in the brain,
  • prior life experience,
  • prior IQ,
  • prior functioning level in the various types of activities

 

Factors WITH options (steps and strategies that person with dementia is taking in order to prolong functioning abilities in the various categories):

  • coping strategies, ESPECIALLY sense of purpose,
  • exercise of mind and body,
  • Meeting other needs for the various neurological, spiritual, social, psychological and biological factors can increase or extend functional cognitive abilities in various ways.

In my personal observations, acceptance of grief process and new or renewed sense of purpose have been the greatest determining factors for cognitive longevity among my friends and relatives with dementia (but getting publically attacked can strongly challenge that needed sense of purpose).

Yes; our abilities will continue to decline, but depending on the various factors for each specific individual, we can extend the best-possible cognitive abilities and quality of life for a longer period into that decline.  … unless we just quit trying to LIVE life.  So let us try to keep our relationships encouraging and empowering.

 

No person has ALL the facts, not even the medical professionals.  They try, but everyone is human, with human limitations and human mistakes.   i will continue sharing despite nay-sayers, and i hope my friends continue to do so also.  We have a purpose — to help others by opening a window to our world — the good and the bad; the ugly pieces and the breathtakingly-beautiful pieces.  By this means we hope to help others feel less alone
… and give them insight for making decisions and finding coping strategies.
THANK you, my friends.

 

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018-02/05. Tags are: communication, dementia, PWD, relationship, strategy.

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Dementia Mentors and Susan Suchan

Tru here.  I was part of the original group when Dementia Mentors was formed 01 Jun 2014 (altho we started making videos in February LOL).  I had tried mixed groups (with lots of care-partners and a few persons with dementia) but still felt off on my own, and could not connect well.  Finding a peer group of others living with dementia was a breakthrough in how i dealt with my own symptoms.

Dementia Mentors is not only an online texting peer group, but, thru virtual Zoom video Link, we visit in each other’s homes up to four or five times a week — without leaving the safety of our own home.  During virtual chat, others can understand my symptoms, and i can understand theirs.  We are all “normal” — while we are within the group.  … and none of us is alone.  This is not a formal “support group”, and you will often find us VERY casual (like in a bathrobe, LOL) !

As in any group, some are drawn to one person, while other folks are drawn to another person.  I was especially drawn to several, one of the primaries being Susan Suchan.

Susan had been living with primary progressive aphasia (a form of Fronto-Temporal Dementia) for almost ten years.  As her symptoms progressed, increasingly the listener needed extra patience while she found her words and got her voice to cooperate.  But it was always well worth the wait because her input was so very valuable … and Susan was just extra-fun !

In my own encounters with her during the past four years, Susan had BALANCE.  The fun moments were extra-fun, and the helpful insight was no-nonsense; lets-not-play-games.  What is the REAL situation … and what can be done about it ?  It was a real joy knowing her, and i am so very glad that i was able to interest her in Dementia Action Alliance, an advocacy organization that arranged for us to speak in Atlanta, and arranged funding for that trip.  So i was able to actually hold Susan, and hug her in real skin.

This morning Susan is off to new adventures … but i will miss her terribly.  She died at home, surrounded by family telling her how much she is loved.  Memorial page at >> https://www.forevermissed.com/susan-suchan#about .  Index for pages on my blog with Susan is >> https://truthfulkindness.com/index-persons-with-dementia-pwd/susan-suchan/

((top pic was my square of a blanket project for Susan & lower pic was taken when we spoke in Atlanta for USA’s Dementia Action Alliance)).

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018-01/14. Tags are: dementia, dementia mentors, FTD, PPA, primary progressive aphasia, Susan Suchan,

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Service Dog Training; Task = help up from FALL

Tru here.

Very short YouTube for task is available here >> https://www.youtube.com/watch?v=iBB87j4g_Mo&list=PL2E2lPBsUeBigMbOdZSWBRZzPmR711zWM&index=1 << .

Latest training project with service dog trainee is helping me get up from a fall. 

Like the task of finding & bringing my husband, I think Hero has just about “finished” this task for his training.  These two tasks are his primary job description.  But at 17 months old, he is still far too distractable and impetuous to call him a finished service dog; definitely still a trainee.  I understand labradoodles are exceptional partnership-thinkers, but you cannot expect this breed to “finish” as a service dog until after two years old.

“Front” is task of positioning (because can be used for other tasks as well).  Then “Brace” is task execution.  This is one of Hero’s favorite tasks because i start within reach for him to cuddle me, and because it is quickly done.  Plus, i think he feels macho when he does it, LOL.

Recorded this very short video yesterday, 02 Jan 2018.  – Truthful Kindness.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2018-01/02. Tags are: dementia, fall, service dog, strategy, task

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Dementia Underwear

Tru here.  Dementia advocacy has been on back burner, and will be for close to a year.  But, as always, I’ve been very busy, so haven’t written about dealing with dementia symptoms much lately.  That doesn’t mean I haven’t been dealing with them tho.

Past few days having added problems with clothes.  Husband asked about it when I had been “getting dressed” for about an hour.  I was still undressed, sitting on bed, huffing.  Explaining kind-of clarified problem.

Getting dressed takes much longer time now, so more time for interruptions.  Gotta go potty, then since i am at sink i realize might as well wash face and brush teeth.  So return to sitting on bed getting dressed.  Obviously not dressed, but i have undies on … So lately, every day i wonder; did i already change them ?

Helpful to have a partner in caring for myself; husband had suggestion.  So now writing day of week on front of undies.  Hopefully this makes my day go easier (at this stage) because i can check my cell phone to see what day it is, and that clarifies things.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2017-10/22. Tags are alzheimers, clothing, dementia, dressing, strategy.

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TLK Strategies 2017Speech Spiritual

Tru here.  This is transcript for “Psychological” section of my speech on Person-Centered Compensation Strategies.
Dementia Action Alliance 2017 conference in Atlanta GA on 2017-Jul 27.
This is the second of four quadrants and Video Link is at bottom of Blog Posting.
Further detail for various aspects are also in Links at bottom of Blog Posting.

Okay … Spiritually what are my current Abilities, dys-Abilities and strategies?

I think spiritual life may carry stronger feelings than any other category.
For many folks this is what guides the ship
… but for others it makes them really uncomfortable, so I’ll keep this short.

First, I want to note the “Wings of Prayer” drawing by Sunny Chandra of Singapore,
and the meditation drawing from McNair Scholar’s Rock.

Maybe YOUR spiritual strategies involve connecting with the earth thru gardening, or time with the woods, desert, or ocean.
… To each his own.

As the Person loses ability to travel and control of their time, their clothing, and their environment, their Belief System may become cloudy and inconsequential,
or it might become even more crucial to their identity and personal well-being.

Theology has been a major interest of mine since I was very young.
But now I don’t remember the ancient languages of scripture.  The words are familiar, but meanings are lost.

So since dementia intensified, prayer and relationship has taken priority.

Also, my more recent belief changes are getting fuzzy;
Why did I decide that ?
and when reminded, I only remember for a few minutes.

Beliefs, rituals, and hymns from my younger years are again comforting.
I know that I disagreed with some of the theology
… but I don’t remember why.

So this year we had a Christmas tree again.

I remember I had strong reasons for discontinuing a tree but …

When I ask my husband why we don’t have a Christmas tree (over and over again)
… It’s time to have a Christmas tree again.   ((LOL))

And now it’s different.
With my dementia symptoms I don’t remember the theological background;
I remember the family moments from my youth.

While many aspects of life are declining,
my spiritual life is continually growing.
Non-word communication creates an unbelievably rich exciting relationship connection!

For me personally, Creator’s love is the anchoring absolute of my life.
It’s the lodestar of truth
that anchors the circumstances I find myself in,
and guides my decisions,

…  so I have a separate blog for my spiritual journey.

.

.LINKS.

Link for this 3-minute section is now available on YouTube at >> https://www.youtube.com/watch?v=COW1IK6Pq6c&list=PL2E2lPBsUeBigMbOdZSWBRZzPmR711zWM&index=11   <<

Transcript of Introduction for speech was in my last blog entry at  >> https://truthfulkindness.com/2017/07/25/strat-17sp0-intro/ .  First quadrant transcript was https://truthfulkindness.com/2017/08/14/strat-17sp1-psych/ .  This entry has second quadrant, and following quadrants will be my next blog entries.  Next will be Social Dys-Abilities, Abilities, and Strategies.  … but if you just cannot wait, the entire session (over 1hr including both Laurie’s and my presentations) is on YouTube at >> https://www.youtube.com/watch?v=nZTCAlfg_Zg&list=PL2E2lPBsUeBigMbOdZSWBRZzPmR711zWM&index=1&t=9s  <<

LINKS with further detail on some of the above:

((  Spiritual Blog at >>  https://tlk4spiritual.wordpress.com/  ))

Blog entries HERE that are “spiritual” in nature >>  https://truthfulkindness.com/category/spiritual-aspects/

Loss for recent belief changes >>  https://truthfulkindness.com/2015/12/15/spiritual-journey-dementia-symptoms/

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © 2017-08/28. Tags are alzheimers, dementia, strategy, Dementia Action Alliance.

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TLK Strategies 2017Speech Psych

Tru here.
This is transcript and video Link for 10-minute “Psychological” section of my speech on Person-Centered Compensation Strategies.
Dementia Action Alliance 2017 conference in Atlanta GA on 2017-Jul 27.  Transcript and Link for introductory section of speech was given in my last blog entry.
This is the first of four quadrants and Video Link is at bottom of Blog Posting.
Further detail for various aspects are also in Links at bottom of Blog Posting.

…  What are my Psychological Abilities, dys-Abilities, & strategies ?  

.

One method for strategies
is capitalizing on the thinking processes that work best
— and minimizing reliance on those that work least. …

.

Neuro-Psych scores say
My abstract reasoning is still labelled “superior” & my visual processing is still very superior”,
so that’s helpful for … RESEARCH.
I still have good skills for Relationships, and my wRiting skills are mostly intact.
But … after 17yrs of decline, most everything else is really low.
Reading comprehension, ‘Rithmetic, & Remembering are the biggest holes that I need to work around.

Here we compare my Neuro-Psych math scores … over time:
I was in gifted math during grade school,
Business Student of the Year in High School, and worked in Accounting.
… So my math started very high.

Even after I lost my job due to what was probably my first small stroke,
arithmetic was still at 75th percentile.
That means still better than 75% of others with 2yrs college.
But as you can see it’s now dropped to 5th percentile.

Ugggh!!   Numbers, numbers, NUMBERS!
I no longer understand numerical concepts over about ten.
75 and 57 sound like the same amount to me,
and they look numerically like the same amount.
… So what can we do?

Remember my visual processing is still part of that good cheese …?
So my husband (motioning to back of room) — back there at the end –
will make a picture or a graph like he did right there (pointing).

I was feeling neuro-psych testing was a waste,
So he put together these graphs and this is one of them.
When I looked at all those pages with decreasing color,
… then I could see testing was not a waste of time .
So you might consider how Neuro-Psych scores could help YOU tailor strategies.
… at least until conditions change again .

George Huba is a person with Fronto-Temporal Dementia who has a PhD in Psychology.
His ideas capitalize on visual processing.
So check out some of his blog entries at hubaisms.com.
(Uh-oh; this isn’t the slide that has his name on it, but I can get it to you.)

… Now other Psych needs & work-arounds.

Some of my common Lewy Body symptoms that create problems are vivid dreams during the night & hallucinations during the day.

  • Lewy Body Dementia Association says ultra-vivid dreams and hallucinations are so common that they’re almost hallmarks of Lewy Body.
  • I have two kinds of dreams;
    either violent blood-and-guts dreams where I rescue and transport at-risk people
    … or reading emails from friends.
  • Never liked violent movies but my dreams would make great movies;
    They always have a happy ending (or usually), but always after lots of stress.
    ((uh-uh;  Hero, Lay down.  Thank you.))
  • My dreams are too graphic to say aloud. ((Hero Lay!  Thank you.  Good boy.))
    – which makes the point that if your loved one or patient is exhausted there might be a very good reason.
    Yes, they’re just dreams, but for a while after waking up,
    My bedroom environment is under the transposed environment from my dream.
    So I can’t tell which one is real.
  • Then I fall asleep again … only to begin a new episode in the same environment.
  • These dreams are more REAL in every way than day-time,
    And they are much more exhausting, so I fight sleep.
    Then in the day-time I wonder; Which one was real?
  • So I worried that my view of reality was being altered by these ultra-vivid dreams.
    Because running, hiding, getting shot and seeing others die is
    well it’s … bloody … hard WORK !”
    … and I desperately needed rest.  So …

Strategies for ultra-vivid dreams:

  • Sight doesn’t pop me out after a dream, because dream-reality is super-imposed over consensus reality,
    but my husband’s voice is immediately recognized – at least right now.
  • Psychiatrist conclusion is that I’m well-adjusted to both past and current trauma,
    so with his encouragement I take no drugs.
    But he’s given good insight that I’m not applying dream-happenings in my day-to-day interactions.
  • One of my most effective tools is a lap harp (which I was going to bring but there were complications).
    So I brought my newest, which is a pentatonic drum.
    I don’t try to remember any “songs”, but the notes can’t clash (that’s what pentatonic means basically – to me).
    … so I just PLAY.  And that is helpful for changing channels.

Okay; we’re still in Psych symptoms.
How about hallucinations?
Remember that altho hallucinations come later with many types of dementia,
They’re early with Lewy Body:

  • Before I got my dog, mostly I relied on other persons around me;
    is there a tick on me?” (for sight hallucination).
    “Is there a radio on?” (for sound hallucination).
    “Is there smoke;  something hot?”
  •  But when alone I rely on my dog:
    I was sure there was an injured bird fluttering at the porch door,
    but the dog’s lack of action told me it was an hallucination.
    The next day, I saw a bird standing – just standing on the kitchen floor.
    So I was sure it was an hallucination.  IT wasn’t; that one wasn’t. !!
  •   I have online peer groups, and I asked friends with Lewy Body Dementia, … so now:
    Retired Dr Jennifer Bute & I both use fresh coffee grounds to relieve bad smell hallucinations;
    Mike Matherly and I both use over-riding sound hallucinations with a louder sound,(but that can be difficult because of over-stimulation).
    …  Curry Whisenhunt suggested a journal for the Dr, etc.

So here’s a hard one; When you can’t rely on your own senses for a “reality-check”, and basic abilities of life are rapidly decreasing, change is extra scary.

So what strategies for stress and emotions?

Harry Urban is now living in his 14th year of living with Alzheimers.
He uses visualization to fool his senses into a short vacation.
For Me? I try to create constructive outlets for my emotions,
So I’ll enthusiastically pull weeds,
rip sheets for making rag rugs,
walk … or write.

Right now my most effective tool for grief-work is still writing,
… then adding a picture to what was written.
It can be as simple as pieces of paper behind the prose.
But this method provides a page for my life notebook.

Tactile memory:

Look closely at my dresser drawers,
I discovered that, just like kitties purr  when you visit them,
the suction cups from octopus will suck in and out on your skin if they like you.
So along with hickie-kisses from the octopus,
I brought home a stuffed toy to go on my dresser drawers.
So you get the idea; tangible objects to hold as you’re being reminded of the event.
… and I touch them every morning when I get dressed (because I have to move them in order to get to my underwear).

.LINKS.

Link for this 10-minute section is now available on YouTube at >> https://youtu.be/gr1h7Za3fhg   <<

Transcript of Introduction for speech was in my last blog entry at  >> https://truthfulkindness.com/2017/07/25/strat-17sp0-intro/ .  This entry has first quadrant, and following quadrants will be my next blog entries.  Next will be Spiritual Dys-Abilities, Abilities, and Strategies.  … but if you just cannot wait, the entire session (over 1hr including both Laurie’s and my presentations) is on YouTube at >> https://www.youtube.com/watch?v=nZTCAlfg_Zg&t=7s  <<

LINKS with further detail on some of the above:

George Huba website  >>  https://hubaisms.com/  <<

Terrors & Dreams >> https://truthfulkindness.com/2016/01/19/impact-terrors-dreams/ <<

Video Demo of Nevel Harp >>  https://www.youtube.com/watch?v=aub51qOyGtQ  <<

Service Dog issues >>  https://truthfulkindness.com/service-dog-issues/  <<

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. With the new terminology, my current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright 2017-08/13. Tags are alzheimers, dementia, strategy, Dementia Action Alliance.

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