Tru here on Sunday, April 19. On Friday, I finished my first public speech in many years, on subject very important to me; Value of PWD Lived Experience as Contributor towards Dementia Friendly Community. Husband took these pictures as part of the video which we hope to post soon. Saturday there was a meeting, and […]
Current draft of my oral presentation at Australia
A discussion of my own goals … while living with dementia symptoms.
This Dementia Trail is a very bumpy trail with tangles of thistles!! As we go, we can sign-post some of the dangers for those following behind, and I think that is what we do with our writings. Coaches & on-lookers can observe and assist, but we on the Dementia Trail itself have a unique perspective. Someday there will be a cure, and we hope the trail will not last long enough to become a well-worn path. But in the meantime … Thank you, Harry, for continuing to shine the light on your path, in order for us to better see our own paths.
Remember when Teepa Snow had us put our hands in front of forehead, then illustrated impulse filter? Well lately I am seeing that demonstrated in my own life; my impulse-control is getting a hole in it. …This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself?
This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself? As far as talking, it comes back to what I said three months ago; the only secrets I know I can keep … are the ones I forget. So again; if you don’t want me to spill the beans … don’t put them in the pot !
Like many other dementia symptoms, I think smell hallucinations can be a tremendous distraction to thought; whether productive conversation or other types of thought. Another aspect of concern is safety. When I smell “burning” several times per day, I automatically discount my sensory credibility. If something was truly burning, I would not know it unless I noticed smoke, heat, or fire.
Dissatisfaction does not connect with source of dissatisfaction – just too vague. …
Conversation Tips: My problem with communication is once I lose track, everything after that starts to crumble. The following suggestions may help me stay on track and participate in conversations at least in this early stage. … Environment, Content, and Timing. … These efforts took approximately 25hrs in six days to complete written portion, in order to begin graphic.
Now that I have experienced the fragmenting effects of dementia symptoms for myself, I have discovered the GROUNDING and steadying effect from physical touch in that unsteady, fragile, edge-of-the-cliff world. I very much wish I had known this when my maternal grandmothers were walking this path. … (prose attached)
Sooner or later this frontal-lobe filter will fail; that is an accepted part of this path and almost inevitable. … It is not that I do not enjoy time spent with friends I have developed in these groups. It is not that I do not value their friendship, I just cannot afford extra stress from the “privacy” aspect of group. … if you don’t want me to spill the beans, don’t put them in the pot.
