Value for Lived Experience of PWD as Contributor to Dementia Friendly Community
Current draft of my oral presentation at Australia
Category Archives: Journal
Focus on Essential Priorities
A discussion of my own goals … while living with dementia symptoms.
Harry’s Lantern on the Dementia Trail
This Dementia Trail is a very bumpy trail with tangles of thistles!! As we go, we can sign-post some of the dangers for those following behind, and I think that is what we do with our writings. Coaches & on-lookers can observe and assist, but we on the Dementia Trail itself have a unique perspective. Someday there will be a cure, and we hope the trail will not last long enough to become a well-worn path. But in the meantime … Thank you, Harry, for continuing to shine the light on your path, in order for us to better see our own paths.
Hole in my Self-Control
Remember when Teepa Snow had us put our hands in front of forehead, then illustrated impulse filter? Well lately I am seeing that demonstrated in my own life; my impulse-control is getting a hole in it. …This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself?
This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself? As far as talking, it comes back to what I said three months ago; the only secrets I know I can keep … are the ones I forget. So again; if you don’t want me to spill the beans … don’t put them in the pot !
Dementia Success Stories
“How we made a difference for self and those around us AFTER diagnosis”
A dementia brain-storming project by participants of PWD Perspective newsletter
Time Priority Adjustment and Bathtub Issues Since Dementia Symptoms
tub strategies and issues
Recent Disconnect from Understanding Source of Dissatisfaction
Dissatisfaction does not connect with source of dissatisfaction – just too vague. …
PWD Experience as Resource for Dementia Professionals
Tru here. 2014 was the year I realized that, in an ideal world, the collective lived experience of Persons With Dementia (PWD) would be a rich resource for dementia professionals (or any person) dealing with PWD. 2014 is the year I began hallucinations, and then began Aricept prescription. Aricept much improved my hallucinations, recognition of […]
PWD Leadership in My Own Life During 2014
Tru here. What does a leader of PWD (Persons With Dementia) look like? Collins dictionary says a “Leader” is the first person on the climbing rope. It is the first animal in the team, or the first section of blank film or tape into the projector or machine. Vocabulary dot com says it is the […]
Please Do This for Me
Tru here: The feeling of being surrounded by people — but people so very DIFFERENT than I — is loneliness … in a crowd of loved ones. I APPEAR to be just my normal self. No huge changes are visible. All changes are beneath the surface. You do not see change in my actions so […]
