Category Archives: Symptoms

May Pages by others with Dementia Symptoms

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I am beginning to eliminate the “PWD” label from by own vocabulary.
I will NOT go to each one of my friends who have dementia symptoms with the need to discuss diagnosis issues, especially with the recent changes is terminology and definitions. Instead I will attempt to change my own phrasing, titles, and pictures, in both blog and newsletter, with efforts to minimize misunderstandings. But this will take time, so please show patience, but also do not be surprised at the changes.

So far this month I have posted pages from the following persons with dementia SYMPTOMS who have shared their lived experience: Cecil Ristow, David Kramer, Harry Urban, Janet Pitts, Kevin Smiley and Max McCormick. Thank you so very much for your generosity of letting the public into your private world ! My hope is that your words can be applied to help and encourage other patients, care-partners, and professionals.

Symptom Problems with Overnight Stays or Motel

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  Tru here.  Recently returned from three weeks of overnight stays at various places, and I was asked for suggestions. Flooring:  Highest priority was carpeting.  Most places we stayed did not create feeling of disorientation from pattern of the carpet, but one place did.  Every time I stepped out of the door to our room I was […]

Re-Blog of Diagnosis Issues

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Due to some recent events, my lack of confirmation for dementia diagnosis has become an issue.
Thought I would re-post my previous blog on the subject, just to make sure there are no current misunderstandings (and for my many new friends). Current status is STILL pending. Have had two specialist appointments in past 4 months, and 2 more appointments are currently scheduled.

Harry’s Lantern on the Dementia Trail

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This Dementia Trail is a very bumpy trail with tangles of thistles!! As we go, we can sign-post some of the dangers for those following behind, and I think that is what we do with our writings. Coaches & on-lookers can observe and assist, but we on the Dementia Trail itself have a unique perspective. Someday there will be a cure, and we hope the trail will not last long enough to become a well-worn path. But in the meantime … Thank you, Harry, for continuing to shine the light on your path, in order for us to better see our own paths.

Hole in my Self-Control

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Remember when Teepa Snow had us put our hands in front of forehead, then illustrated impulse filter? Well lately I am seeing that demonstrated in my own life; my impulse-control is getting a hole in it. …This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself?

This is really devastating. My iron-strong stubbornness of self-control is a big part of my personhood. Can I still BE reliable Truthful Loving Kindness .. if I cannot even rely on myself? As far as talking, it comes back to what I said three months ago; the only secrets I know I can keep … are the ones I forget. So again; if you don’t want me to spill the beans … don’t put them in the pot !

Smell Hallucinations and Dementia

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Like many other dementia symptoms, I think smell hallucinations can be a tremendous distraction to thought; whether productive conversation or other types of thought. Another aspect of concern is safety. When I smell “burning” several times per day, I automatically discount my sensory credibility. If something was truly burning, I would not know it unless I noticed smoke, heat, or fire.