ConversationalWordSentences

Posted on by

Tru here.
Have written on this topic several times, because every year my symptoms are more severe, and past few years my understanding of spoken words is where i am slipping most. .

i now attend very few video chats with my friends, because even with the assistance of watching lips,
i understand very little of the conversation. .

My hearing itself has not changed, but Lately when i am in conversation,
i hear one large collection of sounds, instead of individual words in a sentence.
and i think i am missing most of the consonants.

Instead of hearing “how was your night”,
i hear “ow uz unight?”,
or even “owuzu Might?”
… which makes it very difficult to understand and reply.

This problem is compounded by the fact that i still speak at a quicker pace than what i am able to process sounds from others. 
(Just as i type and write much better than my ability to understand written words and sentences,
whether i wrote them, or someone else did.)

.

… the only tips (other than my previous suggestions, in Links below) are:

i will try to speak at a slower pace, modeling the rate i wish others would speak. 
i will try to clearly separate words,
enunciate consonants very clearly, and
give extra time between words and after sentences.
Especially allow extra time between change of topic. 
in the same way that i am hoping that YOU, (the other person in my conversation) will also do those things.
Everything else i can think of is already written in my prior strategies below.

SOOooo
Better understanding of the SYMPTOM is here with
“Floating Words” >> https://truthfulkindness.com/2018/12/31/floating-words/ , and here with
“No Meaning for Words” >> https://truthfulkindness.com/2016/09/06/no-meaning-for-words/ .

Past pieces i have written on Verbal Comprehension STRATEGY are here >> https://truthfulkindness.com/2014/12/12/verbal-comprehension-strategies-1/ and here >> https://truthfulkindness.com/2019/10/20/verbal-comprehension-strategies-3/ ;

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i am attending few Zoom groups right now.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

.

Disclaimer that i misunderstand things and make mistakes too, so there might be mistakes in Calendar. — *** —

 

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

DAILY at DM (Dementia Mentors): we host more than 40 virtual memory cafes each month. These are “member-only” gatherings for those living with dementia (every day except Sundays for persons living with some form of dementia — and also twice-monthly for Partners on Sundays). More info here >>  https://www.dementiamentors.org/ .

To be part of Dementia Mentors’ video chats, membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358

.*. . .*. . .*. . .*. . .*. . .*. . .*.

These are OTHER events i know of during this week:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

19 Oct, Mon: Dementia Mentors’ (members only) SMALLEST gathering is currently Monday afternoons (so am highlighting it here on my blog).  10am Hawaai, 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa. Membership form is at >> https://bit.ly/DM2020contact .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

20 Oct, Tues; FTD Patient Support Group on Tuesdays, (members only): If you have a firm diagnosis of Fronto-Temporal Degeneration and would like to join the FTD Patient Support group, please contact sherylwhitman.FTD@gmail.com. The group also has a video Zoom meeting every Tuesday; 10am Pacific time, 11am Mountain time, 12 noon Central, and 1pm Eastern time.  Members-only.  https://www.theaftd.org/living-with-ftd/support-for-people-with-ftd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

20 Oct, Tues; DAA Drop-in with Dr Susan on Tuesdays:  While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays  at https://zoom.us/j/4567882023  ((1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa)).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

21 Oct, Wed: LBD Living with Lewy (members-only): Membership is limited to those diagnosed with Lewy body dementia. These video Zoom gatherings are part of the “Living with Lewy” FaceBook support group, so you must be on FaceBook and a member of that specific FaceBook group.  Members-only.  https://www.lbda.org/go/virtual-groups .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

21 Oct, Wed: Dementia Mentors’ (members only) are offered Wednesday-night guided meditation series.  (( 6pm Pacific Time, 7pm Mtn, 8pm Central, 9pm Eastern, 2am UK )). Members-only.  >> https://bit.ly/DM2020contact .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

22 Oct, Thursday: DAA Discussion topic …. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is at this page >> https://daanow.org/online-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

23 Oct, Friday: DAA Faith Hope and Love; using spirituality through challenging times.  Fridays at https://zoom.us/j/4567882023  ((  NEW TIME: 10am Pacific Time, 11am Mtn, 12 Noon Central, 1pm EASTERN time, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

27 Oct, Tuesday, is next Dementia Chats with Lori LaBey. (4th Tuesday).  This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate >> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .  ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

5 Nov, Thurs: Dementia Mentors’ Christians (members only) are offered “Christian” gathering on 1st and 3rd Thursdays of each month.  This is non-denominational Christian group for fellowship and prayer.  (( 9am Pacific Time, 10 Mtn, 11 Central, 12 noon Eastern, 5pm UK, and 6pm South Africa)).  Members-only.  >> https://bit.ly/DM2020contact .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

18 Nov, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia.   (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )). at https://teepasnow.com/services/online-learning/webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

 

Dirt Road In Autumn With Early Morning Fog - Foggy Autumn Dirt Road@seekpng.com

. * Admin issues: SHARE dementia awareness thru buttons below. Subscribe “FOLLOW” button is at the very bottom of the page, with “Category” Links, “Recent Posts” and “Archive”.  If you put your eMail address there you should get an eMail each time i write a blog entry.  If you have a WordPress account, Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. … *** …  If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”.Text Copyright © Truthful L. Kindness 18Oct2020. Tags: alzheimers, communication, conversation, dementia, PLwD, relationship, verbal comprehension, visit .

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Technology Changes

Posted on by

.Tru here.

(insert graphic for FaceBook)

Two weeks ago FaceBook enforced format change, and i became unable to use the social network (until i found a provider with work-around allowing Classic format once again). This has also been review by both CNet and PCWorld (altho i have lost those Links now). With F.B.Purity, i again have access to my dementia friends who use FaceBook. https://www.fbpurity.com/

(insert graphic for “Zoom” for people with dementia)

Zoom enforced format change last Sunday, and it is causing panic and confusion amongst those of us with dementia symptoms.

(insert graphic for feather pen in bottle of ink)

Then last night WordPress forced change in editing format, so writing in my blog has become a brand-new project.

(insert graphic with angry face). uggggh !!!

These new and “improved” technological changes are extremely hard for folks who have lost the ability to mentally “erase” and “re-write” !!!

(insert graphic for Link to my entry on “erase and re-Write”) ((with single “enter” button in html format for new line)) available at https://truthfulkindness.com/2016/02/15/drt-communication-erase-re-write/ .

… and today i spent WAY too long trying to figure out how i can add a simple picture in my blog !!! This is SO very frustrating, and FAR from dementia-friendly !!! i click all the little icon pictures, then forget which ones i have clicked, so click-again , and again, and again. i wrote to the help desk, and they were no “help” whatsoever.

When i analyzed providers for blog space as a person with decreasing abilities, WordPress was clearly the best in 2014, but WordPress is failing with their new and “improved” version, that is for sure !

growl-snarl ! i may not write blog entries very much any more, at this rate.

Okay. Finally found something that gave me ability to insert a single picture from my media file, for top of my blog entry. … But now i forgot how i did it. When i figure out how i did it, i will write the steps here: (Update 12Oct2020).

  1. “plus sign” + in upper left corner, (not the icons that show when you move your cursor).
  2. scroll to about the middle of “media” section.
  3. Select “image”, then when the new window comes up, center option is “Select image”
  4. Click “media Library”, click the picture wanted, then click “select in lower right corner.
  5. This will add picture in your screen, and you need to re-size with drag technique (because there is no pre-size selection process)

.

Now to figure out how to switch to html view, so that i can go to next line without adding a double-row paragraph. If/when i figure that out, i will write the steps here for single line break. Also, Last week i collected a bunch of html pieces for embedding graphics without using my precious media allowance … but until i can LEARN and RETAIN these new techniques then those hours were wasted (because i dont have a tab to change to html-format). Growl-snarl !!!

  1. Three dots in the top right corner of window give options.
  2. Second category is “Editor”, and “Code editor” is second choice within that category (or you can maybe REMEMBER the keystrokes …………………..Cntrl-Shift-Alt-M.
  3. While in html format, add “<br>” where single line-break is wanted.

.

UPDATE 12Oct2020 … Dont remember how i got here, but i am now in html. i see blue text near top of screen that says “Exit code editor” . Obviously that is how to get out.

Summarizing, Until now, i could help others with dementia, and i felt WordPress fell a bit short of “dementia-friendly”, but considering tools for “tags” and social networking, i felt WordPress was one of the best choices. (insert single line-break with html).
Now i can no longer say that. (insert single line-break with html).
WordPress is now very VERY far from dementia-friendly. There must be other choices that do not require this much remembering of what the little icons mean, and complicated processes for simple things.

.

i strongly suspect that i will not be able to continue this blog in the same weekly manner, and sharing from other folks with dementia also became much more complicated.

Will keep trying for a while, but change is inevitable in technology, and also change is inevitable in brains that are in process of decay. Those two aspects of “change” dont work well together.

(insert graphic of heart)

Going to try copy/paste for calendaring portion of blog entry, but it may be gobble-dee-gook without pasting it in html. YaY !!! At least i have THOSE graphics ((smile face)).

—  ***  —

UPDATE: Now able to add graphics and single line-breaks in html. Someday i will try to learn the technique to “embed”, but i am maxed for now.

LINKS:

Text Format >> https://truthfulkindness.com/2019/03/04/text-format-dementia/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/ ;

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Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

.

Disclaimer that i misunderstand things and make mistakes too, so there might be mistakes in Calendar.
— *** —

.*. . .*. . .*. SCHEDULE Expired: .*. . .*. . .*.

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 02Oct2020. Tags: .blog, blogging, change, dementia, dementia friendly, PLwD, strategy, technology, WordPress .

MyFreeCopyright.com Registered & Protected

 

Dementia Mentors in Our Words

Posted on by

Tru here.  .

((Sometimes we get a little bit silly))

.

At Dementia Mentors, we host more than 40 virtual memory cafes each month.
These are “member-only” gatherings for those living with dementia
(every day except Sundays for persons living with some form of dementia
— and also twice-monthly for Partners on Sundays).
More info here >>  https://www.dementiamentors.org/ .

… In Our Words:

Barry (DM Alumni not pictured)

at video at https://vimeo.com/102788408 .

.

Bill (not pictured)

“Dementia Mentors is becoming a close family to me.”
— Bill on 04Sep2020

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Claire (not pictured)

Until I met some of you that Tuesday two weeks ago I literally thought I was just supposed to count down the days till I’d be fortunate enough to die.

I had no idea how successfully we could all keep living, in the midst of this
-or for how long-and with such joy!

It is life-changing to have you all in my life. I am re-thinking my future.
— Claire on 02Aug2020

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Creeky

When I was diagnosed 6 years ago @ 59, my dad was in mid to late stage Alzheimers & all I knew was the end stage.

I didn’t know there was life after diagnosis until I found
Dementia Mentors Virtual Cafés & other groups.

Not only do we share laughter & concerns, we learn from each other. We learn how to adjust to our diagnosis, how do things differently as our abilities change, and how to live a good quality purposeful life.

I’m deeply grateful to Gary Joseph LeBlanc, Truthful Loving Kindness, Delores, Larry, Tim, & everyone who keeps the Cafés going.

Please remember you’re not alone. We’re in this together.
— Creeky on 26Sep2020

Deborah

Without this group of fun-loving folks, I’d still be sitting alone in my apartment.

Meeting others with dementia made me finally realize that there is life after diagnosis.
To discover people who laugh, smile, and truly care about each other is so refreshing. They guided me through the painful changes that I was experiencing.

They showed me how to smile and learn there was opportunity for my new “normal”.

Join us at one of our many meetings. You will not regret it.
And you may meet some folks who might be wearing “goofy hats” and giving you our signature hand wave.
Hope to see you soon!
— Deborah on 30Jul2020

…

Elmarie

Dementia Mentors is where all my friends and family lives in “zoom”
Because we are all in the same boat aka all have some form of dementia.

We laugh and cry together. Exchanging coping skills.
We believe in fairies, unicorns and having fun.

I love that we can share about our dogs, cats and chickens.
I’m grateful to be part of DM
— Elmarie on 25Sep2020

.

Kelly

I joined this group at a very low point in my life.
An old friend invited me to join.

I was ready to call it quits but with the help of the group I found happiness again.
Now about three years later they are my go to family for fun and help.
Thank God for them.
— Kelly on 27Sep2020

Marion

Dementia Mentors to me is making a new friend.
One who understands how I feel. Shares their experience strength and hope.
One you can laugh and cry with. They are a true friend for life.
— Marion on 25 Sep 2020

Marsha

DM café chats have given me light.
Being diagnosed with Dementia at age 57 in 2014 was very dark. I prepared to die.
But then, medication helped. Change of diet helped
and met these wonderful new friends who helped me see the light.

We laugh and have fun.
We get serious and offer our experiences hoping to help.
Which DOES help.

Having Alzheimer’s or any cognitive impairment is challenging. With friends by our side we can find new purpose.
Our families can relax when they see and hear our laughter.

It does not have to be the bitter end.
It can be a new chapter, new purpose and a fulfilling life until the end.
And the end gets further away as we enjoy each day.

Thank you Dementia Mentors! Gary LeBlanc, Tru, Delores and all it’s a great support system.
Visit and see if you find a spark of light.
We’re eager to meet you.
— Marsha 04Sep2020

…

Peter

“Joining Dementia Mentors got me away from the isolated world I had got used to,
it is by far my best social activity”
— Peter 31 Aug 2020

…

Robert (in “tour” picture below)

see vid at https://vimeo.com/189559568 .

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Terrie (not pictured)

The Dementia Mentors Group is a lot of fun.
As the photo dhows everyone is open, honest, friendly and supportive. Different themes is a norm, laughing and smiling is an automatic reaction.
Every meeting is a blast….. — Terrie 24 Sep 2020

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Tim

“Dementia Mentors saved me from the terrible seclusion and mental pain from diagnosis of dementia brings.

When I found this group it was a bright light shining in a vast blackness.
These wonderful people became my, replacing those family and friends who forgot all about me.

I was shown a path to learn how to live with this disease.
As much as I despise dementia, I love all of the people from the bottom of my heart. ”
— Tim 25 Sep 2020

.

Tru

Tru here.  I was part of the original group when Dementia Mentors was formed 01 Jun 2014 (altho we started making videos in February LOL).
I had tried mixed groups (with lots of care-partners and a few persons with dementia) but still felt off on my own, and could not connect well.
Finding a peer group of others living with dementia was a breakthrough in how i dealt with my own symptoms.

Dementia Mentors is not only an online texting peer group, but, thru virtual Zoom video Link, we visit in each other’s homes almost every day of the week — without leaving the safety of our own home.
During virtual chat, others can understand my symptoms, and i can understand theirs.
We are all “normal” — while we are within the group.  … and none of us is alone.  This is not a formal “support group”, and you will sometimes find us VERY casual (and silly) !  The feeling is usually like a family gathering around the kitchen table, because we are FAMILY.
— Tru

Vicki

Dementia mentors chat has truely been a life saver for me especially through this virus Time.
I have no family and only 3 friends I can safely be around.
It’s so great to get to see people and talk.

I’ve been encourage and supported in so many ways!
Thank you so much!!!
— Vicki on 30 Aug2020

…

UPDATE:
The group, DEMENTIA MENTORS, has been the single, most significant, post-diagnosis contribution to the return of social, emotional, and physical wellbeing for people with dementia. We’ve realized that, even with degenerative brain disease or trauma, we can still have meaningful lives with healthy relationships. We’ve discovered that we can still make friends, be funny, learn things, and find the support we need to stay as engaged in the world as we choose to be. We’ve found Life worth living again. Thanks, Gary! – MLR on 02Jan2022.  ((with permission to share 05Jan2022))

…

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358

—  ***  —

LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/ ;

Mentoring Poster at https://truthfulkindness.com/2014/08/13/new-poster-for-dementia-mentors/ ;
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.*. . .*. . .*. . .*. . .*. . .*. . .*.

i am attending few Zoom groups right now.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

.

Disclaimer that i misunderstand things and make mistakes too, so there might be mistakes in Calendar.

.


— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

DAILY at DM (Dementia Mentors): we host more than 40 virtual memory cafes each month.
These are “member-only” gatherings for those living with dementia
(every day except Sundays for persons living with some form of dementia
— and also twice-monthly for Partners on Sundays).
More info here >>  https://www.dementiamentors.org/ .

To be part of Dementia Mentors’ video chats,
membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358

.*. . .*. . .*. . .*. . .*. . .*. . .*.

These are OTHER events i know of during this week:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

28 Sept, Mon: Dementia Mentors’ (members only) SMALLEST gathering is currently Monday afternoons (so am highlighting it here on my blog).  10am Hawaai, 1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa. Membership form is at >> https://bit.ly/DM2020contact .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

29 Sept, Tues; FTD Patient Support Group on Tuesdays, (members only): If you have a firm diagnosis of Fronto-Temporal Degeneration and would like to join the FTD Patient Support group, please contact sherylwhitman.FTD@gmail.com. The group also has a video Zoom meeting every Tuesday; 10am Pacific time, 11am Mountain time, 12 noon Central, and 1pm Eastern time.  Members-only.  https://www.theaftd.org/living-with-ftd/support-for-people-with-ftd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

29 Sept, Tues; DAA Drop-in with Dr Susan on Tuesdays:  While COVID-19 is impacting everyday life, please join us at the Dementia Action Alliance for an online discussion with Susan Wehry, MD Tuesdays  at https://zoom.us/j/4567882023  ((1pm Pacific Time, 2pm Mtn, 3pm Central, 4pm Eastern, 9pm UK, and 10pm South Africa)).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

30 Sept, Wed: LBD Living with Lewy (members-only): Membership is limited to those diagnosed with Lewy body dementia. These video Zoom gatherings are part of the “Living with Lewy” FaceBook support group, so you must be on FaceBook and a member of that specific FaceBook group.  Members-only.  https://www.lbda.org/go/virtual-groups .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

30 Sept, Wed: Dementia Mentors’ (members only) are offered Wednesday-night guided meditation series.  (( 6pm Pacific Time, 7pm Mtn, 8pm Central, 9pm Eastern, 2am UK )). Members-only.  >> https://bit.ly/DM2020contact .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

01 Oct, Thurs: Dementia Mentors’ Christians (members only) are offered “Christian” gathering on 1st and 3rd Thursdays of each month.  This is non-denominational Christian group for fellowship and prayer.  (( 9am Pacific Time, 10 Mtn, 11 Central, 12 noon Eastern, 5pm UK, and 6pm South Africa)).  Members-only.  >> https://bit.ly/DM2020contact .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

01 Oct, Thursday: DAA Discussion topic …. Zoom video chat begins 7am Hawaii, 10am Pacific Time, 11am Mtn, Noon Central, 1pm Eastern time. 6pm London, 8pm South Africa. Link to join is at this page >> https://daanow.org/online-discussions/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

02 Oct, Friday: DAA Faith Hope and Love; using spirituality through challenging times.  Fridays at https://zoom.us/j/4567882023  ((  NEW TIME: 10am Pacific Time, 11am Mtn, 12 Noon Central, 1pm EASTERN time, 6pm UK, and 7pm South Africa )).

.*. . .*. . .*. . .*. . .*. . .*. . .*.

..

Mark Your Calendars for future events:

.*. . .*. . .*. . .*. . .*. . .*. . .*.

14 Oct, Wednesday, Teepa Snow has “Lets Talk” video chat with Persons Living with Dementia.   (( 10am Pacific Time, 11am Mtn, 12 noon Central, 1pm Eastern, 6pm UK, and 7pm South Africa )). at https://teepasnow.com/services/online-learning/webinars/webinars-for-plwd/ .

.*. . .*. . .*. . .*. . .*. . .*. . .*.

27 Oct, Tuesday, is next Dementia Chats with Lori LaBey. (4th Tuesday).  This monthly recorded TEACHING series involving persons with dementia as experts in Lived Experience. Let me know if YOU would like to participate
>> https://www.youtube.com/playlist?list=PLyFH7iN6JFUE9oJFbRre0VAFbPWQFQcT6 .  ((4th Tuesday of each month, 7:30am until 9am Pacific Time, 8:30 until 10am Mtn, 9:30am until 11am Central, 10:30am until 12 noon Eastern, 3:30pm until 5pm UK time , and 4:30pm until 6pm South Africa)).

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Sep27. ((Permission to share from MLR sent to Gary, and Gary forwarded to me on FB msgr 05Jan2022)).  Tags: .dementia, Dementia Mentors, memory cafe, PLwD, social activity, relationship, video chat, Zoom

MyFreeCopyright.com Registered & Protected

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Added this Week on Relationships

Posted on by

Tru here.

For me,
this time of year is a time of introspection and self-analysis for RELATIONSHIPS;
relationships with Self, Creator, Family, Friends, and Community (seen and unseen).

.

TEASER: Finished some pages on RELATIONSHIP (listed below),
but also very hard-at-work on an index of Links for Symptoms and Strategies from me and some of my friends.
The project has 10 hours invested so far, and estimate additional 10 to 20 hours for completing the project.  ((anticipation))

.

This week Finished a page for Harry Urban (on relationship with SELF and disease/illness):

LIVING with Dementia at >> https://truthfulkindness.com/index-persons-with-dementia-pwd/harry-urban/living-dementia/ ;

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and Family relationships:

“Bee Naughty” (when children were removed from parent due to lack of funds) at https://truthfulkindness.com/about/life-other/family-history-index/bee-naughty/ ;

.

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—  ***  —

LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.  Calendar Expired.

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Sep20. Tags: .

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Hard Times

Posted on by

Tru here.

With recent death in the family, poor-to-hazardous air quality for all family members, and some other serious health concerns, my focus is spotty-at-best right now.

So, for a while, mostly will share projects that are almost finished, or not quite as helpful as i would like (but no time and concentration to make them better right now).
Expect things will improve by October.

!!  Remember, Links are on colored text, not the pictures  !!

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

Latest pages added to my website are:

.

Family History:

Song for Casey at https://youtu.be/OChLgO9M0r8 ;

.

GrandFather’s Story at https://truthfulkindness.com/about/life-other/family-history-index/grandfathers-story/ ;

.

About Me:

My Favorite Things at https://truthfulkindness.com/about/about-me/favorites/ ;

.

Recipe:

Orange Chicken with Rice at https://truthfulkindness.com/about/life-other/food-recipes/orange-chicken-rice/ ;

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—  ***  —

LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
..
..

.*. . .*. . .*. . .*. . .*. . .*. . .*.

i am attending few Zoom groups right now.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. Calendar Expired.

.

Disclaimer that i misunderstand things and make mistakes too, so there might be mistakes in Calendar.

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— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*. ((Schedule EXPIRED))

.*. . .*. . .*. . .*. . .*. . .*. . .*.

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Sep14. Tags: .

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Reading Strategies

Posted on by

Tru here, with reading tools that i personally use to compensate for my dementia symptoms.

.

.

i was always a voracious reader, and in 6th-grade my teacher visited my home to speak with my parents
— because he was concerned that i was living life thru books, instead of thru real experiential happenings.

10 years ago i sold about 200 books, many of them because i had lost ability to understand them.
Even now my library is substantial … but now i can no longer understand ANY of my printed books – except for quick poetry PIECES.
So most of these collections will be given away or sold.

For lower-level reading,
e-book (kindle) allows me to highlight sections of the story that will trigger memories about the story.
Because if i get interrupted (even for toilet-break or a notifications “ding” from my phone)
then i need to review those highlights in order to continue the story.

Altho it is at a much lower level, using these techniques has allowed my continued joy of reading.

Anything over about 6th-grade-level i have learned to avoid, because my memory is insufficient to understand what i am reading;
there is no hope of holding the information from early part of paragraph until the later part of the paragraph.
In sentences, the noun and verb must be close together, without too many conditional clauses or explanatory phrases.
Only short paragraphs without too much extraneous detail are understandable.

Some of these stories i have read 10 or 12 times thru the years.
Because i have re-read them so many times, i am still able to enjoy SOME of the books that i read in 6th grade … IF i add some compensation strategies.

For these stories i must listen to audio book at the same time as i read from e-book.
Audio book by itself (without text) is completely useless to me, because the sounds do not go together to make words and sentences.
Either audio or visual by themselves are insufficient for my needs,
— but when i combine them i am able to again read SOME of my old favorites. …
but again, the book must be e-book with tool for easily-reviewed highlights of the story.

((So i use Kindle)).

.

NEW  NORMAL:
When i have additional infection or extra stress, i get a preview of coming dys-Abilities, and i am unable to enjoy this level of short stories.
Then i enjoy several books of short (one paragraph) excerpts on one topic, and short poems.  These i am still able to appreciate, even on “bad” days, so that will probably be my next “new normal”.

My favorite anthology is from books written by Abraham Joshua Heschel called “I Asked for Wonder”.  i also especially like books of quotes — Those are GREAT (especially if they have nice pictures, LOL) !

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LINKS:

Text format – My Dementia Style at >> https://truthfulkindness.com/2019/03/04/text-format-dementia/ ;

https://keepingbusy.com/learning-center/montessori-dementia-reading-groups/ ;

https://www.psychologytoday.com/us/blog/metacognition-and-the-mind/201804/can-reading-help-my-brain-grow-and-prevent-dementia ;

Reading Improves Memory and Helps Prevent Dementia

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.*. . .*. . .*. SCHEDULE: .*. . .*. . .*. ((Schedule EXPIRED))

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Sep06. Tags are: dementia, grammar, PLwD, reading, strategy, symptom, twitter

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Understanding Weather Forecast NUMBERS

Posted on by

Tru here.

i know in many places it is still the “dog days” of August, but temperatures will be changing soon.

Unfortunately most weather forecasts are totally useless to me
— because they just involve a lot of (meaningless) NUMBERS.

…
i no longer understand numerical concepts;
i need PICTURES to understand numbers.
So Wunderground works well for me.

For those who process thought better in visual processing (like me),
i have found the 10-day forecast in Wunderground is a blessing.

shows temperature with red and purple,
clouds with gray,
chance of rain or snow with blue,
and wind is on the bottom graph.
With Wunderground weather forecast, i can schedule appropriate activities … and appropriate clothing.

—  ***  —

LINKS:

Wunderground= Weather Underground at https://www.wunderground.com/ .

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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..

.*. . .*. . .*. . .*. . .*. . .*. . .*.

i am attending few Zoom groups right now.

Calendars will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. Calendar Expired.

.

Disclaimer that i misunderstand things and make mistakes too, so there might be mistakes in Calendar.— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.  ((Schedule EXPIRED))

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If
.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Aug30. Tags are: dementia, numbers, planning, PLwD, tools, visual representation, visualization, weather.

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Hot August Knights

Posted on by

Tru here.

!!  Remember, Links are on colored text, not the pictures  !!

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

Latest pages added to my website are:

.

Other Contributors:

“One More Night” by Toby Heyworth at https://truthfulkindness.com/index-persons-with-dementia-pwd/toby-heyworth/one-more-night/ .

—  ***  —

Family History:

Spencer/Marshall/Drake:
Death of John Drake at https://truthfulkindness.com/about/life-other/family-history-index/john-drake/

—  ***  —

Bits ‘n’ Pieces (memoirs):

2000 Bodie at https://truthfulkindness.com/bnp/part-3/2000-bodie/

.

Exclusive Focus at https://truthfulkindness.com/bnp/part-1/exclusive-focus/ .

—  ***  —

—  ***  —

LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
..
..

.*. . .*. . .*. . .*. . .*. . .*. . .*.

i am attending few Zoom groups right now.

Calendars EXPIRED:  will eventually be removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb.

.
— *** —

.*. . .*. . .*. SCHEDULE: .*. . .*. . .*.

DAILY at DM (Dementia Mentors): we host 40 virtual memory cafes each month with Dementia Mentors.
These are “member-only” gatherings for those living with dementia
(every day except Sundays for persons living with some form of dementia
— and also twice-monthly for Partners on Sundays).
More info here >>  https://www.dementiamentors.org/ .

To be part of Dementia Mentors’ video chats,
membership form is at >> https://bit.ly/DM2020contact .

Video “tour” is at >> https://vimeo.com/showcase/3464118/video/264048358

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These are OTHER events i know of during this week: ((Schedule EXPIRED))

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If
.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Aug24. Tags are: n/a.

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Mask = No Communication or Identification

Posted on by

Tru here with TWO added dementia complications from face mask; Understanding speech and Facial Recognition.
For ME, a world of masks is a frightening place … but so is meeting a person without a mask !

.

Don’t get me wrong; with my other health complications,
getting covid 19 would be high danger for me —
So i think mask-wearing is crucial.
But it is also important for folks to know the effect masks can have,
in order to compensate whenever possible to retain SOME communication and relationship.

So …

 

Visit to hospital brought discovery that
if those around me have masks on their face, then
i am basically deaf.

With my dementia symptom of understanding speech,
i must see lips moving to make sense of the sounds i hear.
Without lips moving then my primary tool is facial  expression
(most of which is covered with mask and glasses).
Tension around the lips or friendly lips ??
IF glasses are narrow frame, then i am more likely to see crinkly eyes that might show a smile
— but must be very close to see it.

Even with my husband beside me,
i must ask him to remove mask in order to truly understand the words that hospital personnel have told him to tell me !

extremely EXTREMELY frustrating and totally useless unless SOMEONE is willing to remove their mask.

—  ***  —

If everyone speaking to me wore a clear mask, the sounds MIGHT be more muffled,
but i would be more able to put together the puzzle of what is said.

—  ***  —

additionally, i already have quite a few problems recognizing faces.
Since most friends my age now have gray hair, there is no recognition of differences there.
So basically there are eyes, nose, and mouth.  — but Mask covers most of that area.
Chances that i can recognize you are highly unlikely.

When i am out of the house i am always with only strangers
(including my husband unless he is in the process of speaking – because i recognize his voice).
And none of those strangers are friends or friendly
— because how can i know they are being friendly when i cannot see their face or understand their words ??

.

For ME, a world of masks is a frightening place
of no identification,
no communication,
and all the friendliness of a SILENT masquerade
— VERY alone in a crowd of anonymous strangers.

i dont feel safe to be around people who are NOT wearing a mask (for my own health),
but i also dont feel emotionally safe to be around people who have their face covered !
… So very thankful that my husband can handle most of the “public” needs for us.

Now more than ever
… i NEVER leave my home !!!

—  ***  —

i know about cell-phone voice-to-text, and that might be something to try next time.  (This time i was just totally overwhelmed with the futility of attempting communication).  But i also know how often voice-to-text mangles my message.  Most usually requires quite a bit of typing to compensate … and often voice-to-text is more work than just typing it myself.

—  ***  —

Now i totally rely on video communication … but i am getting rather touch-hungry.  https://www.healthline.com/health/touch-starved#short-term-solutions .

.

LINKS:

CDC says ”

  • People who are deaf or hard of hearing—or those who care for or interact with a person who is hearing impaired—may be unable to wear masks if they rely on lipreading to communicate. In this situation, consider using a clear mask. If a clear mask isn’t available, consider whether you can use written communication, use closed captioning, or decrease background noise to make communication possible while wearing a mask that blocks your lips.
  • Some people, such as people with intellectual and developmental disabilities, mental health conditions or other sensory sensitivities, may have challenges wearing a mask. They should consult with their healthcare provider for advice about wearing masks.

at https://www.cdc.gov/coronavirus/2019-ncov/prevent-getting-sick/cloth-face-cover-guidance.html ;

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
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i am attending few Zoom groups right now.

Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. ((expired calendar))
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.*. . .*. . .*. SCHEDULE EXPIRED: .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

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* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Aug16. Tags are: communication, CoronaVirus, covid19, dementia, isolation, mask, PLwD, recognition, relationship, symptom, virus.

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More Pages Added

Posted on by

Tru here.

I just keep adding more pages to this blogsite,
just as some of the old farmhouses keep adding rooms.   LOL  !

!!  Remember, Links are on colored text, not the pictures  !!

Right-click on colored text and selecting “open in new tab”,
will allow you to return to this tab easily (at top of window) when you finish.
Remember, Links are on colored text, not the pictures.

Pages recently added to my blogsite are :

.

Tommy’s Tips for Visits at https://truthfulkindness.com/index-persons-with-dementia-pwd/tommy-dunne/4visits-2020/

.

Dementia Info Links at https://truthfulkindness.com/about/d-info/ .

.

Family History: War in Rhineland-Palatine at https://truthfulkindness.com/about/life-other/family-history-index/war-palatinate/

.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

LINKS:

Index for other contributors is here >> https://truthfulkindness.com/index-persons-with-dementia-pwd/

My most crucial entries are here >> https://truthfulkindness.com/category/important/crucial/

Most recent are here >> https://truthfulkindness.com/
..
..

.*. . .*. . .*. . .*. . .*. . .*. . .*.

i am attending few Zoom groups right now.

Calendar removed to prevent over-Loading the upLoad limit for website “Media Library”, because they actually take quite a bit of mb. ((expired calendar))

.*. . .*. . .*. SCHEDULE EXPIRED: .*. . .*. . .*.

.*. . .*. . .*. . .*. . .*. . .*. . .*.

* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If
.
* Admin issues: SHARE dementia awareness thru buttons below. Feel free to leave your thoughts in the form of comments, but please filter your comments with truthful loving kindness to all concerned. If interested in receiving notice of future blog postings, subscriptions are available through a “follow” button in the upper left corner (MS Explorer) or lower right (Safari, Mozilla Firefox and Chrome). If there is an advertisement below, I have no control over what is shown. My own full legal name is Truthful Loving Kindness. My current diagnosis is still Mild Cognitive Impairment, but my neurologist said I am in a unique position for helping because I have “one foot in each door”. Text Copyright © Truthful L. Kindness 2020Aug09. Tags are: .

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