Link to Susan Suchan’s speech at 2014 Tulsa, Oklahoma Alzheimer’s Walk: https://www.youtube.com/watch?v=CQSXM5JHBlU . Transcript below: It is wonderful to see you all here today, thank you. I want to tell you a little bit about my personal story. About eight years ago I lost my sense of smell. I nearly burned my house down because I […]
Tru here. My Dementia Mentors video regarding Driving with Dementia was posted at dementiamentors.com/videos section on Sunday August 24, 2014. Some people have difficulty viewing Vimeo sources, so it is also posted at https://www.youtube.com/watch?v=IlXo8cvBpEc . (I still have not learned this application very well so if that link does not work then go to “truthfulkindness” […]
Tru here. AVAILABILITY of online dementia Communities: Dementia Alliance International (DAI) sponsors several online video “support” groups, each with no more than ten members. My group gathers on Mondays. DAI also sponsors video group “Café Le Brain” online Memory Café, which I attended today (Tuesday). Dementia Mentors (DM) has the video group Memory Café Wednesdays, […]
Tru here. Edmonton Journal Link to article of August 20, 2014: Dead at noon: B.C. woman ends her life rather than suffer indignity of dementia (with video). I have heard talk that in many countries suicide will be EXPECTED for those with disabilities (especially dementia) in the future, exactly because of the reasons Gillian discusses […]
Tru here. Please remember, each person’s experience with dementia can be widely different. Not only are there many different kinds of dementia (with Alzheimer’s in the lead), but some doctors say that most people with dementia have a mixture of several types of dementia, each in different amounts. Additionally, individual personality, motivations and life experiences create unique dementia […]
… Since I learned from those who went before me and led the way, …
Tru here. Discussion of terminology for care is a hot-topic all the way around. These are my personal thoughts regarding the term “service user”: In my experience the problem is not the impersonal nature of the term “service user”, but rather the consuming nature of the term. We are the “user”, “consumer”, etc. Our care […]
Tru here. I have a couple dementia friends feeling desperately helpless, desperately scared, and unwilling to impose this life onto their loved ones who are willing to be their “care-givers”. Maybe you are feeling desperate too. Some have said they rely on my positive “sunshine” and I have a message to you: My “sunshine” is […]
Tru here. I have dementia. My productive time and energy is becoming progressively limited. As a dementia patient I must prioritize my activities. I am not feeling sorry for myself — I am being pro-active. My abilities are dwindling because my brain is dying. How much of the important things can I fit into my […]
Tru here. Nocturnal Leg/Foot Spasms (probably related to Lewy Body Dementia and Parkinson’s) Here it comes again; not childbirth labor, but very similar contractions. Here it comes again. Wake up! Wake up! Tension increasing. Foot tightening. Foot twisting until inside of foot is straight up-and-down. Quick! Get foot FLAT and maybe it will improve! Tension increasing. […]
